HealthUnlocked Reviews 248

It's a great site for people to come together to get and give advice.
Many sites on the range are moribund/ dead / not living any more.
2 tech issues are that one can't save a reply mid writing, to maybe go away to check a fact. Needs a " save" function. And uploading photos is a faff - needing a stupid title for no useful purpose.
Otherwise a very useful Community tool.

Great forums.
Its lear and easy to use
people are kind and helpfull
Highly reccomend

The aim of these forums is good, to bring people together to discuss various health conditions. The problem I have is there is no way to hide or ignore members whose behavior is difficult. So, you end up stuck having to put up with unpleasant abd hurtful comments from people lacking insight into other people may be struggling too.

The result is I feel unsafe posting there anymore as I have no control over who can respond to my posts. As someone woth chronic illnesses I have enough wearing me down and I don't need those people people wrecking the minimal contact I have with people.

Used to be such a a good website/ forum but since it was sold it's fairly useless I m afraid.
They seem incapable of saving a password.
I don't bother with it any more

Thank you for your response
I have contacted you folk THREE times to no avail,and emailed the CEO of the company who bought healthunlocked - he didn't have the courtesy to reply either
I have a Google pixel phone.
Every time I open an email to read a post it asks for my password
Never used to be like that
If other websites can remember my password why can't yours?
Shockingly inefficient.
I also don't like the plethera of posts from the US where treatment is different
I ve tried to unsubscribe but that doesn't work either
You are clearly full of promises and hot air

If other websites

HealthUnlocked has been my go to resource to communicate with other MPN patients for at least 3 years. It is a great resource for information, ideas and for emotional support.

It's a 'home' for those of us working through our disease and finding comfort from others who share their stories. It's informative and the administrators are consummate professionals.

Life Saver. Intelligent. Informative. We are all one Family of people suffering RLS and totally neglected by the Global Medical Profession, because Nobody has a Real Insight or ability to explain what this Chronic Disease of Horrific Suffering Really Is!!!

Like so many, I was desperate to stop RLS progression AND find the best treatment to continue managing its destructive power over my body. I read so many helpful comments in other people's dialogues and received very specific responses to my health problems, answers that I and most of us never got from our doctors. I am finally on my way to a full resolution, starting with a series of restorative nights' sleep gained from the knowledge-base from this site.

Well I think your all very helpful and you know what your talking about ,it’s a pity drs aren’t as clued up as you all are thankyou to you all

Health Unlocked is a wonderful place. Especially the Depression and Anxiety group! They are very understanding! Also there are a lot of very intelligent people that give great replies where others aren't able!

I do wish the other forums there were more active,had more people like A&D does. But nothing I can do really! Its still a safe,understanding environment!!@

Very informative asks questions you might not want to ask medical professionals.

Bring a member of this site has been very beneficial for me and has helped me cope when I've been struggling with my mental health. It's been a bit of a lifeline as it's a safe space to discuss things that you probably wouldn't feel comfortable talking to family members or friends about.

The shared experiences, and advice from other RLS sufferers is invaluable, and makes me realise that I not alone.

Seems to be well organised & ‘policed’ by ROS.Although I post very Infrequently I normally read new posts everyday. I found the ROS helpline very useful as is their website & information to download. At times there seems to be quite a lot of ‘negative’ comment about prescribed medications. I suppose that’s because people who are happy with their meds don’t post!

i joined an online forum to discuss my health problems online with like minded individuals.
healthunlocked Atrial Fibrillation association
The first post I looked at was one about the effects of flu jab and Atrial Fibrillation.
the user asked a question about having a flu jab & that some people suggest that it may trigger or increase the AF.
so i answered it using public sources; the green book by the uk government explaining what where and when.
and the 2 being offered to elderly.
and their specification sheets i found on the Food and Drug Administration. just search for their names and you can look at the statistical data, serious adverse effects etc.
i also showed the other drug product sheet i found on the electronic medicines compendium. the manufacturer states that the current one is the same as the quad so i listed that one too.
well apparently this is not allowed you cant post drug info and you cant list serious adverse effects. all your posts will be deleted by moderators. I was told by hollieadmin that I had breached our rules
and guidelines, they were removed by Admin. Now Ive had my account permenantly removed my log in doesnt work.
Imagine a forum where you cant discuss anything.
I didnt even give a personal opinions just statistical info from published sources.
Shut up Grandad! Take your meds and dont ask any questions.

Been on HU for over a decade and have to say it's been amazing. I did struggle at first found it difficult but it's been a great support from the anxiety depression forum to the mental health forum and others. The ones who come here and trash the site are the ones who don't say the things they done like verbally abuse others and they don't like it when they are removed. If I'm alive in 10 years time then I'll be on HU because it really is a great site for suoport.

P H Pattie needs to read the rule of the site and HU. They say very clearly that if any content embarrasses, alarms or distresses anyone they have a right to report it. Clearly her post did which is why the admins/mods deleted it. If they didn't think it was likely to then they would have left it, or maybe put a trigger warning. Or turned off the ability to reply. Anyone could have reported it and their reaction would have been exactly the same. They seem unable to understand that none of the members have any sway with the mods or HU and act purely on the rules. My advice is to read them. Don't complain when you break them and they are deleted. If you don't like the rules then don't use the site. End of.

So much fantastic info on Thyroid UK. Wish Endos were this clued up! Wouldn't have gotten this far without this site on my Thyroid journey!

This company is not to be trusted
This company has a way of defending and invigorating the bullies who claim to be "triggered" by the honest pain expressed by others. They apparently complain to administrators who simply delete what others write, or delete and block them. Watch what you say with these few bullies who seem to have unfair favor with administrators. *Extra: I addressed people who have thoughts of suicide in a post with a great resource I've used online for years. I did not post a link, but gave name of the resourceful site, and I was surprised at how many responded with interest and gratitude. Then someone responded with an angry rant about how offensive this was to loved ones who have lost someone to suicide, and accused me of recruiting and promoting suicide, which was completely inaccurate. My post was deleted, then someone from the company emailed scolded and deleted my account and any trace of those messages because I responded to the deletion of my post with outrage at being silenced and deleted for the comfort of others over those who needed this source of support.**I just read a review below my review on here trustpilot, discrediting what I said about HU deleting posts. HU absolutely deletes posts at will without informing anyone, and without explanation. I've seen this happen at least 3 times in the last 6 months. The admins are fairly nonexistent, but the few bullies are users of the forums. The email I received from the person by first name only from the company is still in my email as proof, in case HU responds to this and requests proof.
I have been on the forums since 2021 and they were a great source of support until this happened, without a valid or fair response to the deletion of both my post and my account.

I found HealthUnlocked RLS forum in 2016 when I was experiencing really severe, increased RLS symptoms on a dopamine agonist. My doctors in the UK were dreadful. They knew absolutely zero about the disease or dopamine agonists or the extremely common side effect of drug-induced worsening. I have since discovered that RLS is not taught at medical school or during GP or neurologist training. Absolutely horrifying.
The members on the forum were so knowledgeable & pointed me towards the latest RLS research and the few doctors in the USA who knew how to get patients off dopamine agonists safely. As a result, I was empowered to learn everything I could about RLS. I bought the medical textbooks from the USA and corresponded with the top US experts who were so generous with their advice on how to get OFF dopamine agonists and to find suitable replacement medications.
I am now completely RLS free on low dose buprenorphine. Finding HealthUnlocked saved my life. Literally!